|
Action Drépanocytose |
Sikkelcelziekte |
http://www.actiondrepa.org |
George Bantuanga Balaka |
george_bantuanga [at] yahoo [dot] fr |
|
AHVH - Hemofilievereniging |
Hemofilie & Willebrand |
http://www.ahvh.be |
Eerens Jo |
info [at] ahvh [dot] be |
|
Albinisme contactgroep |
albinisme |
http://albinismevlaanderen.tripod.com/ |
Vermeir Johan |
johanvermeir [at] skynet [dot] be |
|
ALS-Liga |
ALS (Amyotrofe Lateraal Sclerose) |
http://www.alsliga.be/ |
Reviers Evy |
info [at] alsliga [dot] be |
|
ASED |
drepanocytose (sikkelcelziekte) |
http://www.ased.be/ |
Mokambo-Akabe Pauline |
ased_asbl [at] yahoo [dot] fr |
|
Association Belge de Thalassémie |
thalassemie |
http://www.abthalassemie.be |
Avgusta Avgoustopoulos |
info [at] abthalassemie [dot] be |
|
Association belge du syndrome de Marfan |
Marfan syndroom |
http://www.marfan.be/ |
Brandt Léon |
info [at] marfan [dot] be |
|
Association lupus érythémateux |
systeemlupus |
http://lupus.be |
Fayt Anne |
contact [at] lupus [dot] be |
|
Association Syndrome X-fragile |
fragiele X syndroom |
http://www.x-fragile.be |
Compere J-M |
info [at] x-fragile [dot] be |
|
Belgische Vereniging voor dystoniepatiënten |
dystonie |
http://dystonie.be |
Durnez Paul |
info [at] dystonie [dot] be |
|
BOKS |
stofwisselingsziekten |
http://boks.be |
De Baere Lut |
info [at] boks [dot] be |
|
BOPPI |
primaire immuundeficiënties |
http://boppi.be/ |
Van Muylem Valérie |
info [at] boppi [dot] be |
|
CAN Cé-TU? asbl |
Hersentumoren |
http://www.cance-tu-asbl.eu |
Stéphanie Devos |
stephanie [dot] devos [at] cancetuasbl [dot] be |
|
CHARGE Belgique |
CHARGE syndroom |
http://www.chargesyndrome.be |
Simon Anne |
anne [dot] charge [at] yahoo [dot] fr |
|
CMP Vlaanderen |
Multipel myeloom |
http://www.cmp-vlaanderen.be/ |
Creemers Johan |
johan [dot] creemers [at] cmp-vlaanderen [dot] be |
|
Debra Belgium |
epidermolysis bullosa (EB) |
http://www.debra-belgium.org |
Jageneau Ingrid |
info [at] debra-belgium [dot] org |
|
Entraide Meniere en communauté française |
Ménière (ziekte van-) |
http://www.entraide-meniere.be |
Berckmans Vinciane |
entraidemeniere [at] gmail [dot] com |
|
Epilepsiecontactgroep Ikaros |
epilepsie |
http://www.epilepsiegroep-ikaros.be |
Blomme-Dorme Rosanne |
ikaros [at] skynet [dot] be |
|
Fondation Lou |
de Morsier-syndroom |
http://www.fondationlou.com |
Boland Luc |
a-lou [at] skynet [dot] be |
|
GBS |
syndroom van Guillain-Barré |
http://guillainbarre.be/ |
Claus Patricia |
patricia [dot] claus [at] belgacom [dot] net |
|
GESED - Groupe d'entraide des SED |
Ehlers-Danlos syndroom |
http://www.gesed.com |
Simonis Florence |
contact [at] gesed [dot] com |
|
HAE Belgium |
hereditair angio-oedeem |
http://haebelgium.be |
Berckmans Vinciane |
haebelgium [at] gmail [dot] com |
|
Hodgkin Zelfhulpgroep |
Hodgkin en Non-Hodgkin (lymfklierkanker) |
http://www.hodgkin.be |
Chantal Denblijden |
hodgkinzelfhulp [dot] wvl [at] pandora [dot] be |
|
HTAP Belgique |
pulmonale hypertensie |
|
Matthysen Luc |
htapbelgique [at] hotmail [dot] com |
|
Ichthyosis België vzw |
ichthyosis |
http://www.devidts.com/ichthyosis |
Jean Devidts |
ichthyosis [at] devidts [dot] com |
|
Liga Myasthenia Gravis vzw |
Myasthenia Gravis |
http://www.emgee.be |
Lodewijk Schrijvers |
secretariaat [at] emgee [dot] be |
|
Ligue Huntington Francophone Belge |
Huntington (ziekte van-) |
http://huntington.be |
Smeers Georges |
secretariat [dot] lhfb [at] skynet [dot] be |
|
MSA-AMS.be |
MSA Multi Systeem Atrofie |
http://www.msa-ams.be |
Rita Schouppe-Moons |
contact [at] msa-ams [dot] be |
|
Mucovereniging |
mucoviscidose |
http://www.muco.be |
Pypops Ulrike |
info [at] muco [dot] be |
|
NEMA |
neuromusculaire aandoeningen |
http://nema.be/ |
De Feyter Bart |
info [at] nema [dot] be |
|
NephcEurope Belgium |
idiopatisch nefrotisch syndroom |
http://www.nephceurope-belgium.be |
Katrien Van Cutsem |
katrien [at] vancutsem-verwarming [dot] be |
|
NF Kontakt |
Neurofibromatose |
http://www.nfkontakt.be |
Mia Desmet |
mia [at] nfkontakt [dot] be |
|
Patienten Rat & Treff |
|
http://www.patientenrat.be/ |
Casteleyn Karen |
karen [dot] casteleyn [at] patientenrat [dot] be |
|
PH Vereniging |
pulmonale hypertensie |
http://www.ph-vzw.be |
Caelen Gust |
gust [dot] caelen [at] telenet [dot] be |
|
Relais 22 |
VCFS/deletie 22q11.2 syndroom |
http://relais22.be/ |
Havelange Paul |
info [at] relais22 [dot] be |
|
Retina Pigmentosa |
retina pigmentosa |
http://www.retinapigmentosa.be/ |
Hallet-Tordeurs Viviane |
retinapigmentosa [at] gmail [dot] com |
|
Syndrome de Sotos |
Sotos syndroom |
http://www.syndrome-sotos.be |
Christelle Donnay |
donnaychristelle [at] hotmail [dot] com |
|
Vaincre les Maladies Lysosomales Belgique |
lysosomale ziekten |
http://www.maladies-lysosomales.be |
Sophie Brabant |
sophie [dot] mps [at] gmail [dot] com |
|
Vereniging voor sarcoïdosepatiënten |
sarcoïdose |
http://www.sarcoidose.be |
Neven Mieke |
hilde [dot] santermans [at] uzleuven [dot] be |
|
Vlaamse Coeliakie Vereniging |
coeliakie |
http://vcv.coeliakie.be |
Doclo Katrien |
secretariaat [at] vcv [dot] coeliakie [dot] be |
|
Vlaamse vereniging voor erfelijke bindweefselaandoeningen |
Ehlers-Danlos syndroom (EDS) & Marfan syndroom |
http://bindweefsel.be |
Aubry Chris |
info [at] bindweefsel [dot] be |
|
VSK vzw |
Klinefelter (syndroom van) |
http://www.klinefelter.be |
Marleen Cornelis |
cornelismarleen [at] scarlet [dot] be |
|
WBS |
Williams-Beuren syndroom |
http://www.williamsbeuren.be |
Pyck Paul |
wbs [at] advalvas [dot] be |
|
Werkgroep hersentumoren |
Hersentumoren |
http://www.wg-hersentumoren.be |
Boeye Frank |
info [at] wg-hersentumoren [dot] be |
|
Zelfhulp Osteogenesis Imperfecta |
osteogenesis imperfecta |
http://www.zoi.be |
Filip De Gruytere |
info [at] zoi [dot] be |
