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Give IT away used IT for rare diseases
Zie je soms afgedankt IT-materiaal ‘rondhangen’ in je bedrijf? Dan weet je wellicht dat het voornemen ‘om er ooit nog iets nuttigs mee te doen’ zelden tot uitvoering komt. De …
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Helpper: kennismaking en infosessies in en rond Gent
Helpper is een digitale ontmoetingsplaats die mensen die regelmatig thuishulp zoeken voor dagdagelijkse taken verbindt met hulpvaardige buurtbewoners die graag een centje bijverdienen.
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EUPATI Belgian Patient Forum 2018
Het betrekken van patiënten wordt meer en meer erkend als een belangrijk aspect van de levenscyclus van geneesmiddelen. Het doel van deze bijeenkomst is om een groep nationale partners uit …
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Registreer jouw Warmste Week-actie!
Zoekt jouw school, jeugdbeweging of bedrijf nog een goed doel voor een fijne Music for Life actie? Zin om soep te verkopen, een wafelenbak à la Nero of zit je …
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Forum van de patiënt en de mantelzorger
Op 29 september neemt RaDiOrg deel aan het Forum van de patiënt en de mantelzorger in Antwerpen. Dit evenement heeft 1 doel: mensen met een chronische ziekte en hun mantelzorgers in …
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Nieuwsbrief September 2018: EDITO
Levenskwaliteit hangt niet alleen af van medische zorgen, maar ook van echt menselijk contact, één op één of in een groep waar je je thuis en begrepen voelt.
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FAGG: Symposium Samenwerken met en voor de patiënt
Patiëntenparticipatie doorheen de ontwikkelingscyclus van een geneesmiddel Het FAGG organiseert op 25 september 2018 een symposium over de samenwerking met en voor patiënten. Het agentschap vindt het immers essentieel patiënten …
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Afgesloten: Uitnodiging diepte-interview over jouw zeldzame aandoening
UITNODIGING TOT DEELNAME AAN EEN DIEPTE-INTERVIEW MET HET DOEL EEN METHODE TE ONTWIKKELEN SPECIFIEK VOOR HET EVALUEREN VAN ERVARINGEN VAN PERSONEN MET EEN ZELDZAME AANDOENING IN BELGIE Er zijn reeds …
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Respijt tijdens de vakantie
Respijt betekent letterlijk: pauze, time-out. Een respijthuis is een huis waar je op adem kan komen, als ouder, gezinslid of kind met een zorgbehoefte.Villa Rozerood, een respijthuis, creëert een omgeving …
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Het gaat hard voor RaDiOrg! Een getuigenis van de nieuwe voorzitter.
“Het gaat hard voor RaDiOrg. Op 10 maart werd ik voorzitter van een organisatie in volle vaart, met intussen 79 ledenverenigingen en honderden individuele leden. Tijd om in te lopen …
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Gezocht: ervaringen met inzage online patiëntendossier
Artsen noteren medische informatie over hun patiënten in een patiëntendossier. Het Vlaams Patiëntenplatform is op zoek naar mensen die hun ervaringen rond de online inzage van het patiëntendossier willen delen.
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VRT 1 reeks ‘reset’
VRT zendt sinds enige tijd verhalen uit van mensen die na een levensveranderende medische diagnose de resetknop indrukken en hun leven opnieuw beginnen. Enkele van deze ‘reset’-verhalen gingen over zeldzame …
