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Rare Diseases organisation Belgium

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Innovation Bootcamp in Rare Diseases

7 septembre 2022 by Eva Schoeters

Don’t miss the opportunity to join us for the 3rd edition of the Innovation Bootcamp in Rare Diseases (IBRD 2022) congress on Tuesday October 11th at Maison de la Poste, Tours & Taxis.

The Bootcamp includes sessions on newborn screening & improvement in prevention, tackling delay in diagnostics, pricing of orphan drugs and true cost of illness, regulatory and access challenges in orphan drugs. RaDiOrg particularly looks forward to the session on the impact of patient organisations.

Discover the full program

The target audience of this event includes all relevant stakeholders involved in the prevention, treatment and diagnosis of rare diseases and orphan drug research and development, researchers, clinicians, pharma, patient representatives and policy makers.

Patient representatives can take part at the special price of 55€ for two participants per organisation. Virtual participation is free for patient representatives. Discover the registration fees here.

Accessibility:
A free and regular shuttle service is provided every day of the week for visitors of the Tour &Taxis site from 5.30 AM to 10 PM. There are shuttles traveling every 5 to 10 min. from Brussels-North (Simon Bolivarlaan) to the site of Tour & Taxis, back and forth. An extra stop is included between noon and 2PM at Rogier Plein.More info: www.tt-app.beThe venue is accessible for wheelchairs.   

Scientific board  
Marc Dooms (chairman), UZ Leuven
David Cassiman, UZ Leuven
Michel Goldman, University of Brussels
Wim Maes, KU Leuven
Bruce Poppe, UZ Gent
Eva Schoeters, RaDiOrg
Erik Tambuyzer, University of Luxembourg
Karen Vanhoorelbeke, KU Leuven
Marie-Françoise Vincent, Cliniques Universitaires Saint-Luc
Jan Voorberg, Sanquin

Register here

Actualité IBRD 2022, Innovation Bootcamp in Rare Diseases

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